Our journey with ALS has been filled with incredible community support and resilience. From countless meals to a fully funded van, generosity has surrounded us. Despite challenges, the love and kindness of those around us have kept our spirits strong. The outdoors became my sanctuary, whether at my favorite coffee shop, under the oaks, or on my neighbor’s porch. The first year of ALS was a whirlwind for us in every way—physically, spiritually, emotionally, mentally, vocationally, and socially. l
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Our journey with ALS has been filled with incredible community suppor…
66K viewsJun 28, 2024
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Embracing creativity and collaboration against all odds! Despite ALS taking away my ability to write by hand, technology has empowered me to type over 83,000 words using just my eyes. The journey of crafting Onward. Forward. has been a true testament to the power of teamwork. Inspired by the legendary Inklings, we formed our own creative circle to fuel our passion for storytelling. Cheers to the tireless hours, the editing, deleting, adding, and most importantly, the fresh ideas that created Onw
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Embracing creativity and collaboration against all odds! De…
11.2K viewsOct 9, 2024
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Sharing a powerful moment from my journey as a caregiver. 🌟 I wanted to show you all the process of getting Brian onto a plane. It’s not just about boarding a flight, but about overcoming challenges with love and determination. With ALS, every movement matters. It takes 4 of us, 2 training days, and immense mental and physical strength to lift Brian out of his wheelchair and ensure he’s comfortable in his seat. This is more than assistance; it’s a demonstration of determination and teamwork. 💜
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Sharing a powerful moment from my journey as a caregiver. 🌟 I wanted t…
48K viewsApr 29, 2024
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Q: Why did you write this book? Brian shares a candid and introspective account of his journey with ALS, exploring profound themes such as soul, suffering, love, and more. With insight and humor, Brian dives into life’s toughest questions, offering a raw perspective on existence. This heartfelt memoir, featuring a foreword by Alanis Morissette, urges readers to embrace life in all its complexities. love. - - - - - - - - 📆Release Date: 9-23-24: Onward.Forward. By B. Jeansonne #BrianJeansonne #th
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Q: Why did you write this book? Brian shares a candid and introsp…
16.4K viewsSep 10, 2024
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Life changed drastically when ALS hit, just as Covid had already upended our social world. That first year was isolating—nights spent on the porch, questioning everything. But from that struggle, we found unexpected strength and closeness. Our family, #thejeansonne7, grew into a force of love, proving that beauty can rise from the ashes. love. #OnwardForward #brianjeansonne #Blove414 #thejeansonne7 #theJ7 #ALSawareness #LivingWithALS #ALSsupport #MotorNeuronDisease #LouGehrigsDisease #ALS | Bria
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Life changed drastically when ALS hit, just as Covid had already upe…
38.1K viewsJun 11, 2024
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The Moth Presents: Brian Jeansonne | Finding Beauty and Love in the Chaos
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That moment when they came home from the hospital and said it might be ALS... everything changed. The confident words couldn’t hide the fear. The blue tape on his arm, the endless questions, and the harsh reality sinking in week by week. It was rough. - Nate, 17 – - - - - #Blove414 #BrianJeansonne #ALSawareness #LouGehrigsDisease #MotorNeuronDisease #LivingWithALS #ALSsupport #ALSCommunity #ALSJourney #ALSFamily #ALS #thejeansonne7 | Brian Jeansonne
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Today marks five years of living with ALS. April 14. It’s a day etched int…
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From dedicated training sessions to an unexpected diagnosis, this is t…
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Imagine a journey that shakes you to your core. After a grueling six-h…
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Living with ALS means I can’t go places alone, but thanks to my am…
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APRIL IS THE MONTH OF DIAGNOSIS. Four years ago, we s…
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Exploring caves mirrors the journey of the soul: dangerous yet invigor…
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Q&A with Brian Q: Do you think your ALS was predetermined? love. - - …
28.3K viewsAug 12, 2024
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Q&A with Brian Q: What do you miss most? love. - - - - - - - - 📆Comin…
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Part 1 🍤 @nathanjeansonne #als #onwardforward #thejeansonne7 #…
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Our family has faced huge challenges—like rebuilding after K…
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I am the handicap @bbakerr23 @nathanjeansonne #als #golf #on…
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This is why I started to lift weights.- Lucas #BrianJeansonne #thejeans…
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#als #ericdane #love #onward #alsawareness | Brian Jeansonne
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Stupid game #als #onwardforward #challenge #thejeansonne7 #tren…
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How do you even begin to express the emotional weight of such a dia…
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After 46-year-old Brian Jeansonne was diagnosed with ALS in 2020, …
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Every contribution counts! Today we’re raising funds for Brian’s car…
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@nathanjeansonne Ball up top 🏀❤️#alsawareness #onwardforwa…
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@nathanjeansonne What’s up doc? 🥕#alsawareness #onwardforward #bl…
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When the hurricane was heading our way, we hunkered down and t…
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A pretty good morning. Love. @thebelovestudio #onward #love …
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