Today, a year ago, our horror began. And on January 27, 2023, we are telling Pippa’s full story. For once, I’m not holding back…It all started suddenly when the school nurse called to tell me Pippa, then age 7, was complaining of losing large chunks of vision and terrible eye pain. That same day our wonderful optometrist admitted her to Children’s Hospital of Alabama, realizing something was very wrong. They tested her for brain tumors and MS, and many other things. But all tests were normal. I

Just a snippet of life at home. Pippa had a phenomenal yesterday of playing with friends and bouncing at the trampoline park, so today her body is revolting in fatigue. We talk a lot about nonlinear progress and taking 2 steps forward and 1 step back. And the need to listen to her body and be ok with fully resting for a whole day if need be. She’s not able to speak yet today but we now know some days it takes longer. I feel like we’re in the marathon stage of Lyme treatment now, and we have to b