A Google spreadsheet helps columnist Connie Chandler set the schedule for her caregiving team, who provide her with ...

A study tested 38 children with SMA who took part in an eight-week breathing exercise program, with some also engaging their ...

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist.

A small molecule known as 10H-phenothiazine reduced the loss of motor neurons, the nerve cells that are lost in SMA, in ...

Changes in motor units closely reflect disease severity in people with spinal muscular atrophy (SMA), suggesting potential ...

Alice Wong, a disability rights activist with spinal muscular atrophy who died in November, left behind a legacy of advocacy ...