The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...
For Bella Marin and her mom, Frances, Bella’s VEDS journey is a road traveled hand-in-hand. “I really don’t think I would have made it this far if it wasn’t for her,” Bella says of her mom. “She’s ...
A Marathon Nearly 40 Years in the Making: David Barnes Runs for the Marfan Foundation’s Team Victory
It’s been nearly 40 years since David Barnes last ran a marathon. In his 20s, he completed the Chicago Marathon twice and the New York City Marathon once. Now 66, he’s returning to the streets of New ...
The Marfan Foundation has awarded seven new research grants totaling $750,000 to support innovative approaches to understanding and treating genetic aortic and vascular conditions. The studies explore ...
The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting research that advances scientific understanding of vascular Ehlers-Danlos syndrome (VEDS), including VEDS ...
VEDS Movement community member Isabella shares in first-person why the V matters to her to raise awareness during VEDS Action Month. The V matters to me because living with vascular Ehlers-Danlos ...
Get answers to the most common questions about participating in research and view a list of studies currently seeking participants. The following studies are currently recruiting participants. Review ...
For Bella Marin and her mom, Frances, Bella's VEDS journey is a road traveled ...
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