New York Post

My mom abandoned me because of my rare disorder — my son has it too

A UK woman who says she was abandoned at birth due to a rare genetic condition has devoted her life to caring for her son, Elijah, who has the same affliction. “My philosophy in life is you can either ...
Winston-Salem Journal

'Today's my 5K day!' — Boy with Apert syndrome greets runners at fundraiser to raise awareness of his rare genetic condition

As runners were about to begin the 5K, Cam Elliott was given the honor of seeing them off at the line and blowing the air horn to get things started this chilly Saturday morning. Elliott, 8, was there ...
KBTX

Madisonville rallies around one-year-old facing Apert Syndrome

MADISONVILLE, Texas (KBTX) - The Madisonville Consolidated Independent School District hosted a volleyball tournament to support Waylon, a one-year-old facing the challenges of Apert Syndrome. Waylon ...
KENS

Local mom says 2-year-old is bullied for her looks. Now, she’s asking parents to help end bullying against kids with disabilities.

SAN ANTONIO — Two years of raising a child with a rare genetic disorder has given Flor Ramirez a unique perspective. Flor is a former KENS 5 employee, and as colleagues, we have helped raise awareness ...
Hosted on MSN

Aaron Chalmers' ex Talia Oatway fears their son Oakley, three, could die after devastating diagnosis

Aaron Chalmers' ex Talia Oatway fears their three-year-old son Oakley could die after devastating new diagnosis. The Geordie Shore star, 38, welcomed Oakley, three, with ex-partner Talia in 2022 and ...